The Timewarp

I’ve been left with a familiar feeling. So much so, that I nearly entitled this piece Groundhog Day. But to call it that that would just be showing another of my traits – the one where I present my own interpretation of things as fact, without having all the information needed. Passing off BS as fact in a confident way. To be clear, Saturday wasn’t a day I’d had before. The feelings I felt were very familiar, however.

Firstly a warning. It’s not usual for there to be coarse language in my posts, but this post is an exception. Consider yourselves warned.

On Saturday night, my wife and I went to the theatre. But it was no ordinary play we were going to see, it was The Rocky Horror Show. You may or may not have come across this masterpiece of 70s kitsch rock opera, but if you haven’t, I’d best give a little background, as you’ll need it to help put my experience of the evening into context.

Rocky Horror is, well, a British institution. Gothic horror, sexual liberation and blurring of gender roles are the big themes, and it has a huge and very loyal following of mainly thirty-something Brits, who – man and woman alike – dress up lavishly, often in basques and fish-net stockings with suspenders to sing along and shout things at the players that over the last thirty years or so have become completely woven into the story.

So this isn’t your usual sort of theatre production. It owes more to a rock concert mixed with another British staple of theatre, the pantomime. The stage show is outrageous, the audience’s costumes are outrageous, and the audience participation is outrageous too, but all deliberately so, with a large amount of tongue in cheek thrown in.

If you are on the autism spectrum, you are probably now wondering why on earth I went to a show like this. Well, you have a good point, really.

My wife is a veteran of the stage show, so it is difficult to keep her away when the tour is in our neighbourhood, and I went with her for the first time a couple for years ago. We have the film too, and I enjoy the rock opera and find the themes fun. Despite this clearly being something of a minefield for an Aspie, there is also the potential there to have a good time.

On my first visit I didn’t dress up. This is perfectly acceptable – whilst dressing outrageously is the norm, the atmosphere is very relaxed, and frankly no one bats an eyelid if you haven’t dressed up. I felt out of place though, primarily, I felt at the time, due to the lack of costume, so for this visit, I was determined to go dressed up. Not in fishnets and a basque, mind you – that would make me feel more uncomfortable than not dressing up at all. Instead, I settled on a glitzy black evening suite with a red bow tie, red conical cardboard party hat and large sunglasses – a theme based on some of the background characters in the film version. My wife dressed in her usual Rocky outfit of fishnets, black mini dress, red feather boa, maids apron, crimped hair and white face paint. We both looked the part.

But that was where things started going wrong, really. If I was going to pull this off, I was going to need to arrive relaxed and happy, and with time to get a drink from the bar to relax me a little. Our plan built in time for this, but it wasn’t to be. We should have left at 19:00 for the thirty-five drive to the theatre, leaving plenty time for that drink and to soak up the happy atmosphere before the show started at 20:30. I was ready at 18:45, but my wife was running late, and we didn’t leave until 19:20. Un oh. Not to worry, I thought to myself, we’ll still have half an hour once we arrive before the show starts. Rewinding a little, during the afternoon, I checked our route to the theatre, and where we were going to park. I’d even updated the sat-nav software on my phone – Nokia have recently made the navigation free to use, so I wanted to make sure that if I needed it, it’d be there without me having to panic.

Half way there, and signs start showing on the motorway matrix signs – ‘Slow traffic ahead’, and ‘J28-J26 Delays’. Oh. No. We need to get off at J26. And then we met the tail of the queue midway between J29 and J28. We stopped. And then we didn’t move for the next five minutes. Oh dear. It’s about a quarter to eight.

Never mind, I tell my wife – we can come off at J28 and take the A road to the venue rather than the motorway. I know the road goes in the right direction, but I don’t know it well enough to drive unaided. I pull my phone out of my pocket, and start the sat nav software. I pull the theatre tickets out my pocket and get the street address of the theatre. It calculates the route for me, leaving the motorway at J26. So – and here is my first mistake – I go into the menus, and choose the alternative route option. This, I think calculates a different route for you – the non-obvious route. It now says I need to leave at J28, which is a mile and a half away. Great! Well, as you’ll see in a minute, it wasn’t, but I’m getting ahead of myself here.

First, I had to contend with a surprise. No sooner had we started crawling along the motorway once more, than the sat nav software pops up a message, tellling me that my navigation subscription ran out three months ago. I f I wish to use the navigation feature, I’ll have to resubscribe. What? But is’s free now! I really need the navigation, so I choose the path of least resistance, and dig out my credit card, and pay, whilst crawling along at 5MPH. There. Done. Phew.

We reach J28 at about 20:00. To compound matters, we are still crawling down the slip road too, but that turns out to be because the traffic lights at the end of them are not phased to cope with large numbers of folks leaving the motorway at eight on a Saturday evening. Once we get past the end of the slip road everything is free flowing, except there is a new problem. The sat nav now wants to take me back onto the motorway. No! This is wrong! Panicing a little I tell me wife I’m going to ignore it, because I know the road I need to take, and once we’re on that road, it’ll recalculate and then go the best way. I make it onto the road we need to be on, and true to word, the sat nav recalculates. It says we are 21 minutes away from our destination. No! It’s now five past eight… This really isn’t good. What’s more, I know that I’ve given the theatre address to the sat nav, and we don’t want to go to that road, we want to go to one that is nearby, where there is a large car park. The two roads are not immediately connected to each other. If I follow the sat nav, I will most likely miss the car park and end up at the wrong place, with no time to spare. I am by now hugely anxious. I know the road I need if I am approaching from the motorway, but not the road I need if I am approaching from the road I am on. I don’t even know the name of the road with the car park on.

I tell myself that I just need to push on, and get to the city centre – I can sort it out when we get to the right area. But I am thwarted again…

After a mile or so, I can see that sat nav is going to send me sharp right at a junction half a mile ahead. That isn’t right! The city centre is dead ahead down this road! So I hit the alternative route button again. It tells me to do a u-turn. What! This is crazy! And then the logic in my head kicks in. Alternative route doesn’t mean take the next most direct route, it means take a scenic route – I’m in no hurry. And whats more, the more you select it, the more scenic is seems to get. There doesn’t seem to be an easy way to reset it back to the most direct route, so I tell it to stop navigating, and then I start from scratch and put the address in once more, all whilst driving. Did I mention it was foggy? Well, yes, it was. I was driving along in fog, fiddling with the sat nav, whitst very anxious, and running very late. Not good. But hey – starting from scratch sorted the sat nav – it now took me on the direct route. And what’s more, the arrival time dropped by five minutes. Phew.

It was nearly eight twenty, when we made it to the city centre. By now, we were following signs for the theatre as well as using the sat nav. Then, in the fog, I missed a turn. Damn. The sat nav suggested we turn right ahead to compensate. I did. More theatre signs. Phew. We carried on a bit further, and then, all of a sudden, I saw the car park we were aiming to park in. Completely by chance we had ended up approaching it from the other side. We parked, and, with five minutes until curtain up, we dashed towards the theatre, which happened to also be five minutes away. When we got there I relaxed a little – there were still plenty of folks pouring in through the door to the foyer. Phew! We both needed to pee. My wife looked dismayed at the queue for the ladies – isn’t it always the way – and I made my way to the gents. Imagine my shock to find it full of women! Not just men dressed as women either – actual women trying to evade the queues for their own toilets. I threw caution to the wind and used the urinal despite the giggling women just a few feet behind me (I thank my kids for this – once you’ve had a three year old girl stare at what you are doing a few times, you can probably pee anywhere).

The bell rang, and folks started to disappear. My wife was still in the queue to get in the toilet door. Anxiety still building. Bah. I hunted out my tickets so I knew where they would be. I checked our seat numbers, and then went to find out which door we’d need to go through. I went and bought a program. The foyer was just about empty now, and the stewards were shouting that the performance was starting. Damn!

After what seemed like an eternity, my wife appeared. I dragged her up the stairs, and we found our seats. We’d missed the opening number, but we were there. I sat there glazed, tense and panicy. We’d not had a chance for a drink, but we had at least made it to our seats.

After a minute or two it became clear that the theatre was very noisey. You expect noise in a Rocky Horror showing – that’s all part of it, but it was especially noisey with chit-chat, far noisier that I remembered it being on my first visit. That was distracting – I found it hard to concentrate on the dialog on the stage. People were whooping and cheering and clapping in all the right places, but I wasn’t. It was just all too much, and the anxiety and tension were not helping. Before I knew it, we were all stood up – another Rocky main-stay – and dancing along. I attempted to move myself in time with the music, but failed. Never mind – I knew if I could just relax a bit, I’d be fine.

As the next few minutes passed, I did start to relax a bit, but the woman in the seat in front was annoying me. She was clearly very dunk, and determined to enjoy herself. That’s not a problem, of course, but she was doing things like throwing her head back in her seat, which was banging into my legs. In my already over-stimulated world, this was a huge distraction.

I did calm down a little and start to feel the show flow through me rather than around me. By the time the Timewarp came around for the first time, I was able to make a little bit of an attempt to join in. Not much - partly because even at the best and most relaxed of time I can’t dance well and look uncoordinated, but also because I’d forgotten the actions. However, I was feeling relaxed enough to try it now.

And then the real problem started. Whilst standing and dancing is all an accepted part of the show, we Brits are also unfailingly polite, and show etiquette dictates that once the dancing is finished, you sit down once more so that everyone can see. Everyone just does it. In lots of ways, it is a joy to see – it just happens in a coordinated manner, from the front towards the back, a row at a time.

But the drunken woman in front of me, and her friend in the seat to her left didn’t sit down. How awkward. I could just about see the action on stage in the gap between the two of them, as long as I kept moving about. How annoying. I didn’t feel annoyed though – it just made me feel more tense once more. After a couple of minutes, some of the women in the row behind me started shouting “Sit down!“. The standing women paid no attention. My anxiety was almost coming out of my ears now – I felt like a conduit for the brewing tension – but still I just sat and tried to see through the gap. By now I couldn’t hear the show any more, it had been drowned out by my internal dialogue, which was asking what I should do. I didn’t know what to do, but thankfully, I had the decision made for me. One of the women in the row behind me tapped me on the shoulder and shouted “can you get her attention so we can get her to sit down!”. As is often the case, once told what to do, I had no problem with the execution. I immediately tapped the standing woman on the shoulder , and as she turned, I shouted “Sit down!” at her. So did half a dozen women in at least one row and possibly two or more behind me.

Her reaction? “No! Fuck off!”. Oh, nice. This acted as some sort of catalyst for me. Instead of feeling anxious now, I suddenly felt very angry. So were the women behind me. The whole area behind me in the theatre were now shouting for the woman to sit down. She ignored them. Her friend didn’t though – she sat down. I stood up and right behind her shouted, with very obvious rage, words to the effect of, “Look – sit down! No one else is standing up! No one behind you can see! We’ve all paid to see the show! Let us see it! SIT DOWN!”. “No! Why the fuck should I?”, she said. The barrage from behind continued, and by now this had been going on for quite a while. Her friends were now asking her to sit down, and she was saying no to them too. Eventually, though, with repeated suggestions from her friends, she did sit down. She then spent the next five minutes talking loudly with her friends, in such a way that I was meant to hear, how pathetic and dumb I was being for asking her to sit down. This typical bullying behaviour has a devastating affect on me at the best of times, but in my current state is was crippling.

Literally crippling. I realised I was grasping both arm rests on the chair. I was stuck fast and tense in my seat. I could barely hear the performance, and I was hugely anxious once more. I was experiencing my strange anxious guilt that happens in situations like this. I know I’m not to blame for this situation, but my body tells me otherwise. The only thing being taken in by my senses were the actions of that woman. Fuelled by alcohol she was bullish, arrogant and aggressive, oh and completely irrational.

When the next stand-up section of the show happened, I didn’t stand immediately. Neither did many around me. Neither did the woman in front of me. She turned to her friends and said clearly, loudly, and with considerable sarcasm that she couldn’t possibly stand up, as it would block the view of those behind. Enraged, I tapped her on the shoulder and said “Look! You can stand up now – no one will mind, BECAUSE LOTS OF OTHER PEOPLE ARE STANDING UP TOO! Just PLEASE sit down when everyone else does, then everyone can see the show they have paid to see!”. She didn’t – she stayed sat down, as if to make a point.

After a couple of minutes she turned round to me and asked what my problem was. She asked why I needed to shout at her, with the confidence of someone who knows she is in the right. Why was I spoiling her show? You know what? I was doing it all because I was selfish. That’s what she said. From her point of view, I was the only person who had a problem with her actions, and it was me being selfish. Shying away from a further confrontation, I shook my head, sighed, and took the fortunate opportunity to stand up and dance that had just presented itself in the show. I didn’t dance of course, I just stood there glazed and anxious, but it did get her out of my face.

She appeared to calm down a bit after this, but spent most of the rest of the first half of the show chatting with her friends, or sulking in her seat when other stood – the sort of behaviour I would expect from my three year old daughter after a telling off. Remarkably, for someone so keen to stand up, she was spending very little time actually watching the show. She did, however leave me alone. The first half of the show went on for another twenty minutes or so, but when I left for the interval I was still very tense, and not really enjoying myself. I chatted a little about it with my wife, over a drink. The drink helped – it took the edge off things. My wife hadn’t heard what had been said between the woman and me, and she said she was glad she hadn’t – she’d said she’d probably have ended up hitting her if she had, and my wife is not a violent woman.

We took advantage of an empty seat to the right of us for the second half of the performance, which meant that I didn’t have to sit behind the drunken woman. Instead, she had an empty seat behind her. She rolled in five minutes late for the second half, and when her friends arrived back five minutes after that, she refused to stand up, which meant her friends took some time getting past her to their seats, leading to extended blocked views for use and others behind. All of this, I am sure was done deliberately and for effect.

But finally, I was able to relax and get into the show. By the end, at the final reprise of Timewarp, I was able to join in and do all the actions without feeling tense or that I was doing it wrong.

It wasn’t the end of the story for the drunken woman though – she decided that she would stand once more, and at various times during the second half of the performance, she once more decided not to sit down when others did, to more angry choruses of “SIT DOWN!” from behind and drunken “NO! FUCK OFF!” responses from her. I was very glad to be out of the firing line.

All in all, it was a very stenuous night for me. The late arrival, the missing of the start of the show, the altercation with an aggressive drunk, and the general loudness of all of it had all taken a large toll on me.

Sunday was filled with a mix of emotions. Flash-backs to the aggression, and to the delayed journey. You’ve seen from my writing here that I remember it all in huge detail. Well, perhaps I’ve needed to write about it here to get it out of my system a bit – to stop that huge detail from playing and replaying in my head time after time.

Did I enjoy it? Well in some ways, yes I did. I like the Rocky Horror Show. I like the music, and I like the themes. It’s fun – even if you are an Aspie. But what was always going to be a difficult night for me was ruined by a stressful journey and the effects of alcohol on someone else. I’m still paying the price today, and that’s no fun.

Peter Pan’s new coat

Ah yes – Peter Pan, the boy that never grew up. I was left feeling like Peter yesterday.

It all started when we rushed out the door on Sunday morning. I took the kids to the rugby ground – my son for his weekly training session, and my daughter to stand and watch with me, whilst my wife went to the supermarket just down the road from the rugby club to get the weekly food shop done. I say supermarket, but it’s actually two right next to each other – Aldi, the lovely and decidedly quirky German import, and Asda, the local giant which is now owned by America’s Walmart. Asda’s name, incidentally, comes from a contraction of Associated Dairies.  I mention this because it is one of those odd little bits of information that frequently pops into my head when Asda is mentioned – there is clearly an association there in my brain, and my AS helps to push me into mentioning it. Only after I’ve told this to people will I start to feel embarrassed for having done so.

Anyway – Asda isn’t the star here, it’s Aldi. Aldi is great – it doesn’t stock the huge range of Asda, and it isn’t big on well known brands, but the things it stocks are usually of excellent quality, and many – such as cold continental meats – are better and also much cheaper than at their giant next door neighbour. Aldi also have a clever trick of having some non-food specials in twice a week at unbeatable prices. Everything from power tools to computers, light bulbs to bathroom furniture. At the start of the summer we bought a giant four berth tent and lots of camping equipment from them when they opened one Tuesday morning (just in case they would sell out before we got there), at prices far better than any of our local outdoors shops could manage. We like Aldi. Anyway…

Whilst I supervised the kids at the rugby, my wife went to Aldi first, and then across to Asda for the few items she couldn’t get at Aldi. We met up at the end of the training, and she told me that she’d seen some winter coats at Aldi – both for my son and me. We wandered down the road to take a look. My son liked his jacket, and I thought the one my wife had found for me was great. They were silly money too, so we bought them. For £18.99 I got a waterproof coat with an unzippable fleece lining. It’s nicely finished, is deliciously warm, and has plenty of pockets. My son’s is like a slightly brighter scaled down version of mine. The fleece lining doesn’t unzip on his, but hey – for £7.99 you really can’t complain – and it is still waterproof.

At home, after lunch, I found myself doing something that I remember doing when I was a child.

I took my new coat, and spent a good ten minutes pouring over it in great detail. I unzipped each of the pockets in turn, and explored them with my hands, seeing what size they were, and wondering where to put each of the things that I carry around with me. I marvelled at the stitching, and carefully cut off the couple of stray thread ends. I examined how the fleece was zipped in, amazed at the trickery used to hide the metal zip ends behind folds in the softer material where it might make contact with my neck.  I tried it on and then took it off again, and then put it back on and did up the zip right to the top. I unfolded the hood from it’s hidden compartment, and then carefully folded it back up. I felt the fabric of the fleece lining and of the outside too. I listened to the sound that my hand made on the outer fabric.

This is something I can always remember doing with clothes, but especially with coats. Coats tend to be quite complicated garments with lots of pockets, so there is much to explore. I can still remember a summer coat (this is the UK after all) that I got when I was about ten. It was green and blue and yellow – very garish in today’s terms, but quite fashionable back in the mid eighties. It had a pouch on the front for your hands, much like a hoody sweat top, but you had to peel the pouch off (it fastened on at the top and one side with velcro) to zip and unzip the jacket – really very unusual. I loved it for it’s unusualness, and for the lovely way it had been stitched together. To me, it was a coat to be proud of. I guess I feel much the same way about my new coat. It is a no-name brand, and in all likelihood the material probably isn’t wonderful quality, and maybe it’ll lose it’s waterproofness quickly. But it is well engineered in a very German way, and well finished, and it was an astonishing bargain to boot.

I keep wanting to put it on – in fact each time I’ve popped out of the office this morning, I’ve put it on. This is unusual – I usually brave the trip to the coffee shop or the post office in just my shirt sleeves, even at this time of the year.

So, I feel like Peter Pan, the boy that never grew up. I feel ten years old again, pouring pride and affection into my new coat. I can’t help it – it’s just me.

Yet whilst my actions may be very much like they were when I was child, I’m concious of the fact that they are not the actions of many, probably most kids. My son is only five, so I can’t compare directly with myself at ten, but his reaction to his new coat was, I think, fairly typical of boys in particular. He liked the colours, pronounced it as  cool and said he’d wear it. When we got home, it got discarded on the kitchen floor and forgotten about until this morning when it was time to leave for school.

Will he react that way at ten? I can’t say, but I suspect he’s more likely to continue to react that way than to have my fascination with the mechanics and design of it.

In lots of ways I’m like Peter Pan – many of the things I do now are the same as when I was a child. However, the child in me is still really rather different from your typical child, so the comparison feels strained to me. I’ve read many times over the last year about immaturity and naiveness in adults with Asperger’s, and associated behaviour being described as child-like. But it occurs to me that I’ve not seen it pointed out that the behaviour is child-like in a peculiarly ASD way – but it most certainly is. And remember how kids with ASDs get described? That’s right – as little professors.

So maybe I’m not like Peter Pan at all. Maybe I’m actually like a little professor, in an adults body, with a strange fascination for winter coats.

A different focus

I wasn’t intending to have a break in writing these last few weeks – it’s just the way that things have worked out. Interestingly, the reasons behind my lack of writing have ended up being very life-affirming for me.

First, the good news: I was approached by someone I used to work with a couple of months ago, about joining them in a new work venture. At the time, I completely failed to grasp the subtle undertones used by them in their email approach. They asked if I knew of anyone with my job skills who might be available, and incidentally, was I available? I couldn’t think of anyone else, and then told them I wasn’t available right now. They pursued me more, and suggested that the job they had available would be pretty exciting, and that maybe I’d like to pop round and have a chat with them about it in more detail. Having thought things over, I decided against pursuing it further, and politely declined.

End of story.

Well, no. I got another email a couple of weeks ago, asking if I might want to reconsider. It was only really when I read this that I realised just how much they were specifically interested in me, and not in whether I knew of anyone with my sort of skills.  You see, this time they said that they were disappointed that I’d turned them down before, and that they were interested in me because I’d worked with them before, and thought I’d be a great fit in their company. I don’t do subtlety very well – it tends to pass me by. Spell things out though, and well, I can see what is really being said.

So, once I’d picked my jaw up off the floor, I went and had a chat with them, which essentially involved me interviewing them, and them trying to sell the opportunity to me. They succeeded. I join them in a month or so! My skills suit the new job far better than the one I’m doing now. I’m really looking forward to getting stuck into it.

My investigation of my potential new employer shifted my focus somewhat. I found that I was spending a lot of my time thinking about the opportunity, and I also made a concious decision not to do any writing here whilst I was preparing to meet them – to help me focus. Without realising it, my job prospect suddenly took on all the familiar aspects of a special interest, and everything else got pushed to the back burner. I was getting the same intense feelings about the job opportunity as I have been getting most of this year from thinking about Asperger’s. I went from checking my blog visitor stats every hour or two, and ruminating over what to write about several times a day, to not thinking about the blog at all, and checking the stats every few days. Just like that.

The sudden change in focus has surprised me. Introspection regarding Asperger’s, and writing this blog has felt so deeply ingrained in me these last few months, that the possibility of not thinking about it has been, well, unthinkable. And yet, without expecting it, that was exactly what had happened. Initially, I was intrigued.

With Asperger’s shifted from being the core of my thinking, would life be any different?

Well, at times it has felt like a great weight has been lifted from my shoulders. By not ruminating deeply about Asperger’s and not looking in microscopic detail at how it affects my life, I’ve not been seeing as many aspects of my life where I feel that I don’t do well. My mood has lifted – but then again, I’ve got a new and exciting job to look forward to, so my mood is going to have been lifted by that too. I’m sure the lack of Asperger’s special interest has played it’s part, but I can’t solely put down my better outlook on life down to lack of it.

Here’s the really interesting thing for me: I wondered if my lack of focus on AS would make my life better – whether I would somehow revert to being more normal if AS wasn’t the middle – and indeed edges – of my world. I think that deep down, that little grain of self doubt in me that isn’t sure that I have AS wondered if my lack of AS focus would have an impact on my behaviour. Is any of my behaviour simply down to conditioning over the course of this year? Have I talked myself into being an Aspie? Have I played out a stereotypical Aspie interaction with the world simply because I’ve learned to do so?

No. I’ve already admitted that I simply replaced one special interest with another – AS got replaced with new job. I thought about it and poured over the pros and cons of joining a small business in every bit as much detail as I have recently thought about AS. I spent a day pretty much solely tracking down hardware and then making a recommendation about what I’d like to use on my desktop when I join. This was fully costed out, with alternate options, all spelled out in an email that took me hours to write in a way that I felt was just right. I’ve spent another day pouring over Google maps, trying to work out the best commute for the new job, including costing out the various options. In short, I’ve been every bit as focussed and all consumed by my new special interest as I have been by Asperger’s all these months.

And in the mean time, my daily interaction with the world has gone on, pretty much unchanged. On days where my mood has been especially buoyant, I’ve maybe taken a little more time to try and make small talk with folks – but that too is normal. My interaction with the world has always been governed by mood – I have good days and bad days, just like everyone else. It’s my wife’s 40th in less than a month, and I keep finding myself thinking that I must sort out her present. I have been saying this every day for a couple of weeks now, and have only managed to spend a little time on one day actually doing something about it. As usual, on all the other days where I should have been sorting it out, my focus on something else (the new job in this case) means it simple doesn’t cross my mind at a time where I can do something about it – even if I’ve written it down in my book of things to do.

So there you go – despite not thinking about AS, my life has carried on in the same familiar AS-like way that it has always done. If you can sense a little surprise in my writing you’d be right, because that little grain of self doubt can be very powerful. But that little grain of self doubt is wrong. I don’t act Aspie, it is simply, and always has been a part of who I am.

Maybe we are not so different…

This, in a sense, is a follow up to the article I wrote earlier about my experience with dipping into autism advocacy. If you haven’t already done so, it would make sense for you to read that article first.

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Imagine if you will, a hypothetical mother. She has an autistic son. She believes that her son was developing normally, but that sometime around the time of his early childhood injections, he started to regress with the signs of autism. She associates the two things, and now absolutely believes that the injections caused her son’s autism. This mother cares deeply for her son, and would do just about anything to reverse that regression, turning him into a normal child once more.

Her son is now seven, and has been receiving an array of treatments, including chelation and the use of a hyperbaric chamber over the last five years. The mother sees some signs of treatments working every now and then, but her son is clearly still autistic. She has learned not to trust mainstream Doctors, after all, they believe in the shots that gave her son this condition. Instead, she is more inclined to believe unconventional specialist Doctors who have brought their own treatments and potions onto the market, with very encouraging results promised by them. To hell with the cost – if it helps her son, it is worth every penny.

Now, this really isn’t meant to represent anyone in particular. It is just meant to give something of a picture of a mother who is prepared to go to any length to reverse a condition that she perceives her son has developed rather than inherited. If you are reading this, and think I’m talking about you, then I’m not, I assure you. I’ve just created a stereotype based on what I’ve read. It may well be an inaccurate stereotype, but I’m sure there are some parents out there who the above fits very well.
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Apostrophes and other problems

I seem to have mislaid my apostrophes. Oh, and I keep wanting to spell apostrophes as apostrophies.

As a child, my spelling was never very good, and whilst I tried hard to learn the rules surrounding grammar, apostrophes, and how to write speech using quotes, my execution was never very good. I could write a good story, but I couldn’t quite master the execution properly.
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Blurry-eyed boy

These days, if you catch me after I’ve been busy for a while, you may find me to be initially unresponsive. Many people over the years have commented that I seem to be away in a little day dream world.

From my perspective it’s no day dream, its more of a shut down.

Let me explain what it feels like:

My eyes lose focus. This is perhaps the single biggest clue that I can read these days to let me know that this sort of shut down is happening. I can cause my eyes to lose focus at will, which feels very calming, but typically when the sort of experience I’m describing happens, it happens automatically.

Despite my lack of visual focus, my eyes will still be looking at something. Something – anything – will be the centre of my vision. This un-focussed focus will move over time from object to object within my sphere of vision.

I will typically be still, and I’m often seated. If not, then my reactions will be distinctly dulled and slow.

My usually very sensitive ears will stop hearing the noises around me.

My brain will be still. Instead of the usual stream of thoughts that race through my head, I’ll find that I’m not really thinking at all. Indeed, I’m not really interacting with my environment at all.

All of this happens automatically, and without me realising it is happening. It feels comfortable, calm and safe. A strange blank contentment fills me.

So, when it looks like I’m day dreaming and you come and ask me a question, its perhaps no surprise that you don’t get a coherent or quick answer. Before I can fully comprehend you, all of my sensory and thought processing has to restart itself, and that takes a few seconds. Indeed, my ability to think sometimes seem to take a few minutes to re-engage properly, almost like I have been asleep.

It isn’t like being asleep though. I’m still aware, to a degree, of the unfocussed world around me. My body has just chosen to shut itself down.

The cause, of course is too much sensory input, and perhaps too much stress on occasion. Rather than face a continued onslaught that my body has started to find uncomfortable, it quietly shuts down, without consulting me.

Whilst my introspection on this trait is new, my experience of it isn’t. I’ve always experienced the blurred eyes, and people have always told me that I appear to be off in my own little world.

In my current world of intense self-discovery, this feels like a wonderful relief. It can be easy to worry that by turning inwards, I’m making my symptoms worse – a self fulfilling prophecy of autistic cut-off from reality.

The blurry-eyed boy has become a blurry-eyed man.

My autism is just the same as it ever was, I can just see it for what it is so much better these days.

Does sensory overload cause you a similar feeling of shutting down? Have people always told you that you appear to be off in a day dream?

A hangover without alcohol

Yes really.

I woke up on Monday morning, and felt terrible. My head pounded, my view of the world felt hazy and I had pain in my kidneys. I felt decidedly hungover. I cursed myself for drinking on what had been a rare night of being on my own.

And then it dawned on me. I hadn’t been drinking. No alcohol whatsoever. I was confused…

I’ve spent some time thinking about this over the course of the week, and I wonder if I’ve figured out what was going on.

I had an odd weekend. It was a mixture of very high stress, too much sensory input and very quiet evenings of solitude. My sister in law gave birth to her first child – a healthy boy – on Friday, and my wife played the part of dutiful auntie and went to see them on Saturday morning. This left me with our two kids from then until Monday evening.

Saturday went well. I’d managed to plan it a bit, and everything slotted together nicely, albeit with high stress on my part. On Saturday evening, I drank a couple of glasses of rather nice red wine, and stayed up later than I should. This was me making the most of my alone time, and also trying to unwind a little from the stresses of the day.

On Sunday, I had some help, in the shape of my father in law. I, of course had to do all the arranging, driving, and cooking, but he helped entertain the kids, and for that I’m very grateful. I was tired, having not got enough sleep, and was feeling hungover too. The hangover was very much like it would prove to be on Monday morning, but I didn’t pay much attention – after all, I had been drinking on Saturday night.

As previously mentioned, I took it easy on Sunday night, mindful of how I had felt that morning. I knew I had the kids on my own on Monday, so alcohol was completely out of the question, and I felt really quite exhausted, and a little displeased at how I had managed to tackle the day. So I relaxed in the evening once more, but didn’t go to bed late.

Monday morning’s hangover was worse than Sunday’s had been.

I dragged the kids out to a local attraction for the day feeling lousy, stressed, and acting decidedly grumpy. I didn’t enjoy it, although the kids seemed to, which was the important thing.

I can’t tell you how relieved I was to go and pick up my wife from the railway station on Monday evening. Nearly three days of having the kids to myself had been a huge drain on my resources. So much so, infact that when I awoke on Tuesday morning feeling not at all refreshed and hungover once more, I booked the day off work to recover. My wife kindly took the kids out for the day so I got most of the day to myself to recover slowly.

So – why was I feeling hungover each morning, despite not drinking?

Well, whilst I don’t recall often having felt this way without alcohol, I can think of many occasions in my life where I’ve spent an evening out drinking in loud and crowded bars, and have come home feeling completely overstimulated. The hangover on the day after a night like this is always quite spectacularly bad.

What if this sort of hangover wasn’t completely alcohol induced?

Remember that too much sensory input leaves me with my senses shutting down – my eyes glaze and I lose focus and my brain starts to block out much of what I’m hearing. To protect me from what have become hostile inputs, my body starts to shut off the senses through which I receive the hostile inputs.

What if much of what I’ve always perceived as a hangover is actually a more extreme shutdown response? Certainly the fuzzy head I experience along with a lack of focus is rather like the visual shutdown that I get at times of over-stimulation. The grumpiness I meter out when hungover is almost always directed towards attempts to make me accept more sensory input once more. For example, I was grumpy with the kids at the weekend when I felt hungover because they were pestering me to pay attention to them. When I feel hungover, I’d rather just sit and do nothing, processing as little sensory information as possible.

Do you see the similarity there?

Maybe when I have a day or even just an evening where I get far too much sensory input, I then get a sensory-induced hangover the next morning, regardless of whether I was drinking alcohol or not.

It’s easy to see how I might not have spotted it before – after all in my day to day life, it’s only really going to be nights out drinking in loud bars where I’m going to get really badly over-stimulated. And the hangover from those nights can easily be put down to alcohol.

I think I need a few more examples of this happening without alcohol to be sure, but right now it feels like there is some sort of correlation there, and that I’m not just imagining it.

Have any of you noticed a similar effect?

Is this what we’re all living for today?

Just look at all those hungry mouths we have to feed
Take a look at all the suffering we breed
So many lonely faces scattered all around
Searching for what they need

Is this the world we created?
what did we do it for?
Is this the world we invaded?
Against the law?
So it seems in the end
Is this what we’re all living for today?
The world that we created.

You know that every day a helpless child is born
Who needs some loving care inside a happy home
Somewhere a wealthy man is sitting on his throne
Waiting for life to go by.

Is this the world we created
we made it on our own
Is this the world we devastated
Right to the bone?
If there’s a God in the sky looking down
What can he think of what we’ve done
To the world that he created?

Lovely words – I hope you agree – and absolutely laden with sentiment that I find irresistible these days.

They are the words to a song by Queen with perhaps an obvious title, Is this the world we created…?, which was written by Freddie Mercury some twenty five years or so ago. For perhaps the quintessential performance of the song, click here to see Freddie and Brian perform it at Wembley Stadium in 1986.

Mentioning music in my blog is a first, but it isn’t for the lack of trying. I’ve started a number of articles about the relationship between me and music since I began writing here, and yet somehow none of them have captured the emotion well enough. This isn’t going to be the article I’ve been struggling to write either – that will have to wait – but hopefully this piece will start to give you a sense of just how much music – the right sort of music – works on me.

Is this the world we created…? only popped back into my life a couple of days ago, after a hiatus of perhaps fifteen years. I’d forgotten about it’s very existence, and only rediscovered it again by accident, on one of my follow-the-link sessions whilst using the Internet.

Having clicked on the video link, the opening chords sent a chill down my spine, and made the hairs on my arms prick up. I knew this song. I knew it was good, but I had forgotten just how good it was.

I was in something of a sad and reflective mood – I’d been reading with some disbelief how it was nearly eighteen years since Freddie had died. I found that incredible.

I remember hearing about his death almost like it was yesterday. For me it was one of those moments that stays with you forever. I was at sixth-form college, and I’d heard the news on breakfast television, and then again on the radio on my walkman on the bus to college. I remember feeling sad, and disappointed that someone so wonderfully charismatic and influential had been taken away at such a shockingly young age – Freddie was only 45 when he died.

When I watched the above video clip for the first time a couple of days ago, the sense of loss I felt was immediate. In two and a half minutes I had been reduced to big choking tears. I watched it a couple more times, and really cried hard for a few minutes.

What was I crying about? A very good question. I felt the loss of something. Was it the loss of a teen idol all those years ago making itself finally felt? Perhaps there was an element of that there, but that wasn’t really it.

Was I mourning my loss of youth? Well, youth clearly has a bearing on this. The music brought back very hazy memories of feeling young and energetic, but also of feeling fundamentally lost, alone and unhappy in a world that made little sense to me.

I think the music had brought back how I was really feeling at that time in my life – a feeling that I kept very well hidden, for fear of, well, I’m not sure what. My peers all seemed to be happy and relaxed with life. They were all starting to look for independence, and were achieving it by going to colleges on the other side of town by bus and by applying for university or planning to go travelling around the world. I too was doing this, but primarily because that’s what everyone else was doing, and I was filled with with a feeling of barely controllable terror much of the time.

I’ve been quite teary on a number of occasions over the last few days. Perhaps this is because I’ve had a bit of alone time in the evenings for a change that have allowed me the luxury of thinking about things in detail. This is a natural conclusion to the anxious and down feelings that I’ve experienced over the last week or two, and I feel lucky to have had the opportunity to try and express and deal with it, finally.

Going back to Freddie’s lyrics, I can’t help but notice just how well they sit with my own view of the world these days. I’m sure they didn’t back when I was a teenager.

It seems to me that there is hard-core logic in the words. Their truth is self evident, yet so wonderfully understated, allowing you to fill out the detail yourself using your own thoughts and experiences of the world. This too may go some way to explaining why the song makes me cry.

The world didn’t make much sense to me at seventeen, and it still doesn’t today at thirty-six.

This song, however is as relevant now as it was twenty-five years ago. Brilliantly simple, yet powerfully touching and perfectly executed.

What more could you want from music?

Tools of the trade

In the front left pocket of my jeans is a pen. And my mobile phone. Oh, and a tiny little USB thumb drive with data for things I’m working on. That last item is a new addition in the last couple of months.

In the front right pocket of my jeans are all my coins, and some used tissues. I know. The tissues should really be in the bin. If I need to take my watch off – like when I bath the kids, for instance – it goes in that pocket too, despite me wearing it on my left wrist.

In the back right pocket of my jeans are receipts that I’ve not dealt with yet. The back left pocket of my jeans is always empty.

In my coat, the left hand inside pocket has my wallet, and my list book. The inside right pocket has any keys I happen to have with me.

Predictable.

Comfortable.

Of course, when I’m at work, the pen, the list book and my phone will all be in front of me on my work table – but that’s predictable too.

I’m fussy about the tools I use.

The pen is a Fisher Space Pen, in brushed chrome. I love its simple lines, its small size when shut, and the feel of the brushed metal in my hand. I can of course depend on it to write on anything too.

The list book is a Italian leather-bound lined CIAK Notebook. Its small enough to fit into my coat pocket, yet large enough to be useful. The paper is thick and a lovely cream colour. It is a pleasure to use.

I carry the pen and the book because I need a list to help me organise my day. The list tells a tale of predictability too.

Each day gets it’s own double page in the book.

At the top of right hand page, I write the date:

Wednesday 20090806

My head likes the logic of the date format  use, which has come from my life in IT. If you view the date as a number in its own right, then the number will always be bigger than it was yesterday. I always underline it too. This date format can have hours minutes and seconds added to it too without the incremental pattern breaking, though clearly this level of detail isn’t needed here.

Below the date is a blank line, and then a list of items that I need to do for work that day. I leave a space at the start of the line for a priority number that I can add later, and then I draw a little check box, and then write the task. I use a number of shorthand tricks:

□ #5437: @PC – What needed?
□ Call @TG – place order?
□ AHU4: Fault. Raise call?

At the bottom of the right hand page I write a letter to indicate which shift I am on at work, and then my actual start and end times. Below this I’ll note any time taken for lunch, and next to the time worked I’ll tot up the total for the day, when it’s time for me to go home:

L: 0945 – 1815    8h15m
15m lunch

Above this, I leave a blank line, and then write my list of tasks for the day that are non work related, back up the page towards the other set of tasks.

With my lists written, I can then prioritise. The priorities go before the checkbox, as I mentioned above. I use the following:

* 1 2 3

I hand draw the star as a five pointer, and it generally indicates something I really have to get done. You can guess how priorities 1 to 3 stack up after this.

Occasionally I draw a star with a circle round it. This is used rarely and indicates something that really really really needs to get done that day

I don’t always tackle the list in the order of priority I have assigned. They are my rules, so I can break them as much as I like too. Generally, if I have a 1 or 2 priority item that I know will only take a few minutes to complete, I’ll do that before I tackle a star item that I know will take longer. I have no hard and fast rules about whether work items should be tackled before non-work items.

When I complete an item, the check box for it gets a tick, and I feel a degree of satisfaction.

If some event of interest happens at work, that I might need to refer back to at a later date, I write it between the two lists on the right hand page.

As the day progresses, I’ll start to use the left hand page in the list book. This serves multiple purposes.

Firstly, starting at the bottom, and working up, I’ll list items I’ve spent:

□ Cash in +50
□ Lunch 4.23c
□ Tesco 78.45d -> 16 clothes + groceries

There’s that shorthand again. The ‘c’ or ‘d’ after the amount indicates cash or debit card, and I categorise how our money is spent (Hey – they are just more lists when it comes right down to it). Eventually this all feeds into Wesabe, where I track our spending habits. At that point, the check box will get a tick.

At the top of the left hand page, I’ll often add events happening that day:

* @1030: Team conf call
* Collect A from Nursery on way home

The rest of the page is used for whatever it is needed for. This could be work or non-work related notes, or more frequently sub lists where a work-related list item is broken down into smaller items, each with their own check boxes so I know what I’ve got done.

Weekends are of course rather simpler. There is just one list, and no work times to note.

So there you have it.

You know, until I actually wrote about it just now, I really wasn’t aware of just how much effort I’ve put into devising this system. If you’re not autistic then you’ll probably think I’m crazy to have thought about this so much. If you’re on the spectrum, then I hope that you’ll see just how much order it adds to my life, and can appreciate how much it helps me to get things done.

The polymaths

I’ve just had another of those moments where something comes into sharp focus and puts a new perspective on my life.

This one surrounds work.

I’ve been in the world of work  for the best part of fifteen years now, and over that time I’ve observed that many of my peers appear to be polymaths.

Nothing struck me as strange about this. All I was doing was comparing those I worked with to myself. Compared to me, a large number of the more able of my peers have excelled at a much wider range of skills than I have. I have accepted this as a universal truth, and at each new job I’ve been unsurprised to find people that were brilliant at many different technical skills. I dubbed these people as polymaths, because whilst I see their existence to be expected these days, I see their technical ability to be far wider-ranging than that which I consider average.

When changing jobs I’ve always been faced with interview questions such as “how are you with such and such a skill?” in reference to a skill area outside of my core competences, and I’ve always replied that I haven’t really had a chance to learn that skill, because it was always someone elses job, and jealously guarded. And that is how it has always seemed to me – except that if I really think about it now, the chaps that I would term as polymaths tended to have these skills despite it being someone elses job.

Maybe I assumed they’d learned those other skills in a previous job, where it wasn’t someone elses responsibility.

The problem with this picture, which is one that I’ve held my whole adult life, is that it is wrong.

Firstly, I think I need to point out that I’ve realised that my polymaths aren’t the wonderfully gifted individuals that I thought they were.

They are intelligent, for sure. But where I’ve been getting this wrong is my definition of what average is. Being unaware of my AS until very recently, I’ve always considered my own level of skill to be a good basis for establishing the average. I’m aware of my relative intelligence level from the point of view of exam ability and from an IQ test I took many years ago. I’ve used these factors my whole adult life to form the basis of where an average level of intelligence and technical ability lies.

But my assumptions have been wrong.

Whilst I may have an above average IQ and above average exam results, my ability to undertake work cannot be extrapolated from this information in the same way as an ordinary neurotypical person. I’m not neurotypical, and problems with my executive function and social interaction skills mean that I do not work to the ability of a neurotypical person with my IQ and exam results. This is new thinking for me.

So I’ve suddenly realised that I have gone through my life assuming that my ability to perform at work is that of a neurotypical person with my IQ and exam ability. And so my peers at work who clearly outperform me got dubbed as being polymaths – brilliant (from my point of view) in many technical streams at once. The truth is that they probably have a similar IQ to me and they probably did similarly academically to me too. These are smart people, without a doubt, but they aren’t geniuses – they are just neurotypical.

I can see another perspective on this too.

The reason that I have never learnt the many technical skills that many of my peers do is not because I am average and they are geniuses. Neither is it really because of my usual excuse that the job was someone elses and hence I didn’t have the opportunity.

It’s that I haven’t got room in my head to learn it. Let me explain:

My working memory isn’t like that of a neurotypical person. It’s small and very detailed.

This means that when I get down to a task – particularly an investigative one – I tend to do very well. I don’t see the big picture around it though, and when I move on to the next task, the specialist skills I have learnt for the task are mostly wiped out within a matter of weeks. Frequently I’ll be asked about some work I did a few weeks previously, and I’ll struggle to remember not only what I did, but how I went about it. This often produces strange looks from people – something which I’ve always felt embarrassed about, but I’ve never really considered why they might be giving the reaction they do until now.

They – of course – don’t have a problem with remembering the technical skills they were using in detail a few weeks ago. They have room in their working memory for many things at the same time, and can call each of these things up as and when needed. This is why they are good at many technical skills at the same time.

And this too, is why I’m struggling somewhat in my current job. There is just too much that I need to know. When I need to concentrate on one area of the system for a while, then I do just fine. But I’m expected to know and manage the whole system – and it’s huge, with many different technologies in it – and that feels extremely difficult to do. It goes without saying that the more capable of my peers manage to understand the whole system with apparent ease.

I can now see that this has been an issue at many of my jobs over the years. In the end I’ve tended to try and build a reputation around having specialist knowledge about the part of the system I’m working with, with mixed success. In jobs where this was possible then it’s worked well, I’ve felt confident and capable in my role, and managers have generally been very appreciative of the work I’ve produced. In roles like my current one, where I need to know about many diverse components in a large system, however, I feel inadequate and something of a fool and a fraud.

There is a clear message here. I need to work in jobs that allow me to become a specialist in a small area. That is what my brain is good at dealing with.

My future at work doesn’t – can’t – lie in my current role – it is slowly drowning me.