Out of the blue

It came like a bolt from the blue.

It always does.

My wife wanted to talk. Not a friendly talk, but one of those talks where she wants to vent her huge frustration with me. She’s very good at this, and whether she realises it or not, has a canny knack of vicious character assassination, in these often one sided arguments that run from when the kids go to bed to when we go to bed.

Argument is not one of my strong points. I’m not often quick thinking, and so argument directed at me is typically just absorbed, and I remain quiet much of the time, unable to think of a decent counter to use. This, of course makes things worse. It makes it look like I don’t care. Of course I care. I just can’t produce the necessary come back that my wife expects and wants.

Our argument last night left me not only feeling down and unloved, but also completely misunderstood, and a little suicidal.

I didn’t see it coming. I rarely do. This perplexes my wife, who thinks she is being very obviously ‘off’ with me for days before hand. But I don’t usually see it, and I didn’t see over the last few days.

My life since my diagnosis has thus far seemed pretty good. I’ve felt like I’ve been achieving things – like I’ve moved on a bit. Except, as I discovered in a flash of inspiration that I had independently of last night’s argument, I haven’t actually been moving forward and achieving things.

What’s been happening is this: My focus has moved in a series of very fixed directions. For focus here, you can read special interest if you prefer. As usual with special interests, I feel to have no control over the direction the special interest takes. I’ll go further than this, and make another point, that I think is especially important here – for the most part, I’ve not even been aware that what I have been doing is indulging a special interest. Seriously.

For the last three or four weeks, I’ve felt like I’m making great progress at work. A series of disjoint jobs that have needed tackling for months have started to pull together into a larger project that is finally sorting out a whole chunk of loose ends. I’ve said as much to colleagues, telling my boss and my wife just a few days ago how satisfying I was finding it that everything seems to be pulling together and things seem to be getting sorted out.

As I mentioned above, my general thoughts on this have simply been that I’ve moved forward, and managed to get on with things and be productive. But that is an illusion.

In reality, it is special interest all the way. And after eight solid hours of complete focus at work each day for several weeks, the cracks have started to show this week. I’ve grown progressively more tired over time, and in recent days I’ve become snappy at home, especially with the kids, and I’ve not been sleeping well. My intense focus at work each day has left me drained outside of work hours, quite lacking in thought and speech, and I’ve clearly been uncommunicative at home – not that I’ve actually noticed this.

Yesterday, I broke. After struggling to get started at work, I found that I was obsessively hunting out cool applications and rearranging the home screen on my phone. I spent three hours on it, when I should have been working. The difference with this was I could see it was obsessive special interest. I couldn’t stop, much to my own horror. Even when I was hungry, it took me a whole hour to drag myself away and go and get some lunch.

So I was feeling quite depressed even before I left for home yesterday. For the first time I could see that I wasn’t a new more productive me, work had simply become my special interest, to the exclusion of everything else.

And then came the argument, which of course I didn’t see coming either.

It was extremely upsetting for me, because of course I was painted in a very bad light by my wife. I understand that this is what people do in arguments – you air your frustrations, and the other person in the argument airs theirs, and so the air ultimately clears, as both people get their grievances off their chest.

But of course, that dynamic doesn’t really work when I’m one of the people in an argument. I soak up the criticism, and don’t offer very much back. I feel more and more awful and useless and poorly understood, and reply less and less. This just makes the other person in the argument even more angry and the cycle goes round and round until bedtime, at which point the other person is often apoplectic with rage, and I’m a gibbering wreck.

So it was last night. I felt wretched, and useless, and that no-one understood me at all, despite my genuine best efforts to explain things from my point of view. The last part of this is perhaps the worst. We all feel useless from time to time and remorse too. But the feeling that the person closest to me really didn’t understand me or how I am, was almost indescribably painful. I felt completely alone, and that I would never truly find any understanding from anyone else.  I could see my life going forward being a series of unintended disasters where I unintentionally piss other people off. With those thoughts, and jibes from my wife suggesting our relationship was in trouble, and questioning whether I was capable of being a father in a family, it’s perhaps not surprising that I started to wonder where life was actually worth living.

I’m feeling a little better this morning – perhaps surprisingly, I slept well.

But I still feel wretched and useless. What’s more I hate myself too. Today is one of those mornings where I wish I didn’t have Asperger’s. I want to be normal. I want to feel like I’m understood for who I am. I want to have arguments with people and I want to be able to organise my life in a way that I get on with other people rather than piss them off. I’ve had enough of faux pas, and of hating social activities. I don’t want to be ultra-focussed on one activity at a time, and I’d like to be able to express emotions without difficulty.

And the daft thing is that my wife suggested last night that I can do all of this, because of a single sentence from the Diagnostic Assessment Report. She said I wasn’t trying. But I do. I try hard every day to fit in and do my best. Perhaps my best just isn’t good enough.

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8 Responses to “Out of the blue”

  1. eaucoin  on July 2nd, 2010  (Quote)

    It may be that your wife is focusing on the problems your Aspergers causes in your relationship with her, but it is probable that much of her frustration is from parenting young children while your attention has been intensely occupied with your new job. Her suggestion that you are not trying may reflect being overwhelmed herself by your diagnosis. She may be more sure than ever that she will need emotional support to raise her children (who may be on the spectrum too), and since the diagnosis was about you, she may think that you are getting permission to abdicate the hands-on aspects of fatherhood because of your special challenges. If you tell her that you love and need her and reassure her that you intend to use therapy to improve your communication with her as well as to help you understand the challenges your children will be facing, I believe she will come to some peace about all this. You can use the strategies you will learn in therapy to make your anxiety more manageable, to improve your change-skills and your social thinking, and to cope better with the distractions that take you away moment-by-moment from what you need to be doing. Keep in mind that your improvement will be gradual and that your wife may need some built-in relief (a weekend away with a girlfriend–or a visit to a day spa or some such) on a regular basis to renew her own strength and courage. That being a better partner will require harder work for you with Aspergers than if you were normal is a given, but you are blazing a trail for your children. You need to help your wife determine (from observation) whether any of your children also need an assessment. This is essential for early intervention. You will learn a lot yourself from observing how professionals help your children to accommodate and mitigate their differences. It’s key to understand that you are not to old to learn and you will improve with effort throughout the course of your life. The people who love us often love us the most in our weakness, and your wife married you in spite of your Aspergers. So tell her that you love her and that you want to begin again. You will need to discard anything mean that she said (it is often legitimate concern expressed badly) and realize that she is as frightened as you are about the future. In my own marriage, I have found that my husband is much more anxious about finances whereas I am more anxious about the children, and this reflects our own areas of responsibility. When one of us is unreasonable (and/or angry) about one of these two subjects, we are being driven by a primal fear of failure. When our children had trouble because of their Aspergers, it left us scrambling on both fronts, and that makes it a special challenge to our marriage, since before this crisis I would be reassuring him about money while he would be reassuring me about the children. Challenges like this can make or break a marriage. Your assessment was about finding out what kind of help you need, now don’t be afraid to go find it!

    Reply

  2. Rachel Cohen-Rottenberg  on July 4th, 2010  (Quote)

    James,

    It’s essential that when you feel that everything is your fault that you remember that NOTHING in a relationship is ever one person’s fault. In my marriage, I also take on a lot of the “If it weren’t for me, everything would be fine” BS, and my husband does his best to drag me out of that place, because it’s a place of severe distortion. (I am fortunate that my present husband can give me this perspective; my previous husband simply saw me as the problem whenever we differed.) We call it “getting me out of the bad guy chair.” You must get out of the bad guy chair and then chop it into kindling and burn it.

    You are dealing with the self-loathing of any minority person who has not yet taken hold of the idea that everyone is equally fine, just as they are. Unfortunately, we do not live in a world that gives us this message, and so we have to give it to one another. Wishing that you were someone else, wishing that you were “normal” (and please find me this mythic normal person, because I’ve never had the pleasure) will get you nowhere but suicidal thinking, and PLEASE do not go there. You have every bit as much of a right to be here as anyone else, just as you are, today.

    You do not have a disorder. You are not a collection of deficits. You are not impaired. You just operate differently from your wife and from most people you know in real time. That’s a lonely place, but don’t make the jump from it being a lonely place to you being a bad or incomplete person. You have been accommodating yourself to the world all your life, and it is perfectly fine to expect that the people closest to you will accommodate to your needs as well. It’s a balancing act. It’s not up to you to take on all the blame, nor is it all on your wife to take on all the responsibility. The key, I think, is for you to get to marriage counseling, and to start looking at your strengths and what each of you can take on in the marriage so that you both succeed and so that the marriage is healthy. And I think it’s crucial that your wife understand that when she unloads on you, you simply absorb it and feel sick about yourself. There are other ways she can frame her feelings so that you do not feel sick about yourself. (I am a veteran of getting people to frame things properly so that I don’t end up feeling like their feelings become a permanent part of my genome.)

    I’ve been thinking of you ever since I read in a previous post that you feel like your self confidence is shot. I am slowly coming out of that place, and it takes a lot of work and self discipline. Please write to me any time. I think we’d have a lot to say to each other on this theme. It’s essential that we spectrum folks reach out to each other and not feel like there is something wrong with us. Different does not mean wrong. Different just means that we live in a world that isn’t set up with our differences in mind, so we have be more resourceful in navigating things than we might have hoped.

    Reply

  3. eaucoin  on July 5th, 2010  (Quote)

    James, in one of your previous posts, you mentioned: “When well guided, I work better than your average person, tend to get on with things without a fuss, and I’ve been well liked by various people that I’ve worked for for these reasons. When I work in a disorganised place, or for bosses who are underhand, then I fare far less well.” There is so much at stake in our intimate relationships that it is more difficult to get perspective, but you have said yourself in this quote that you need some structure (and trust) and with it you perform very well. I think you have highlighted how loyal you are and how hard you work when you are not distracted. These are wonderful strengths to bring to marriage. You are still reeling from the implications of your diagnosis. Only think though, while you have been adapting your whole life to a kind of exile, you found a marital partner, became a father, became skilled with computers and found gainful employment. In this blog, you have been painfully honest at times about your weaknesses, but your strengths are also apparent. When you and your wife have had a chance to adapt your marriage to play on both of your strengths and shield you from both of your weaknesses, you will find your fighting stance again. I did not mean to imply that you are a lesser person than her in any way. But the stance of “I know my rights” is less helpful to a marriage than the “I accept my weaknesses” stance. If you do seek marriage counselling, make sure that your counsellor has a good understanding of Aspergers, as this will be essential. To me marriage is very much about learning to joyfully carry each other’s burdens.

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